Challenges in Rare Disease Research: The Role of Advocacy Organizations in Overcoming these Challenges

What is a Rare Disease Rare disease refers to a condition that affects fewer people. The World Health Organization (W.H.O) has defined a rare disease as one with frequency less than 6.5-10 per 10,000 people. Challenges in Rare Diseases Research Unlike the common disease, research in rare diseases encounters several challenges. They are: Recruiting, engaging,…